Tag Archives: refuah shelimah

Bikur Cholim — lessons learned while a choleh

by Steve Lipman (Forest Hills, NY)

The most notable change in my life took place when I was briefly hospitalized a year ago. I had to undergo a two-day procedure to remove a large kidney stone, and my stay was extended when a CT Scan turned up what my physicians thought was an early sign of pneumonia. That was when I had to reconsider my Hebrew name.

My accustomed Hebrew name is  Zerach ben Pinchas, the title by which I am called to the Torah for an aliyah. Pinchas was the assigned Hebrew name of my late father, who was raised in a very secular household in pre-war Germany, and was never given a Hebrew name. So, with a rabbi’s advice, I decided that his shem Ivri would be Pinchas, the peh aligning with the letter-P that began my father’s English (or, if you prefer, his German) name.

During my short stint in the hospital, many of my Jewish friends asked, “What is your Hebrew name?” They needed it for reciting a misheberach, a blessing for my health.

I had to think for a few seconds.

“Zerach ben Chanah.”

Chanah, of course, is my mother’s Hebrew name; a misheberach is said using a mother’s name, calling on G-d’s (maternal) trait of mercy.

Rarely ill, I could not remember the last time I identified myself as Zerach ben Chanah.

It was a slight change, but a stark reminder of the change (very temporary, I hoped) in my status. I was a choleh, a patient in need of a refuah.

Not only was it a shock to my system—people were praying for me—but I started to look differently at the divide between the healthy and the not-so-healthy.

For a few years I had served as a volunteer several days a week at the same hospital (Long Island Jewish Forest Hills), down the block from my apartment building. As a de facto Jewish chaplain, I would receive a printout of that day’s Jewish patients, and I would offer each person some company, some encouragement, some reading material, some prayers and some moral support. I also spoke with men and women of any faith in the same rooms, who were largely alone during long stretches interrupted only by visits of doctors and nurses.

As a volunteer, I was doing on a regular basis with strangers the type of Bikur Cholim visits that many people in the Jewish community do occasionally, usually with people whom they know.

I had no training as a chaplain; I operated only by common sense: What would boost my spirits if I were in their shoes …  or in their hospital gowns?

After my time in the hospital, I knew.

I had seen the hospital experience from both sides as the person standing next to the bed and as the person lying in it.

The do’s and don’ts of Bikur Cholim are not automatic or instinctual. The brilliant “How NOT to Perform the Mitzvah of Bikur Cholim” video shows in a loving-but-humorous way how even well-meaning visitors can foul up.

I was not subjected, thank goodness, to the ham-handed comments that the video depicts. Hospitalized for such a short time, I experienced Bikur Cholim phone calls only from the few people whom I informed of my temporary status and venue, and all were uplifting. The only person to stop by was my neighborhood’s Chabad shaliach, Rabbi Eli Blokh, who thoughtfully brought a set of tefillin and some homemade vegetable soup. He knew perfectly how to behave in a hospital …  with consideration but not condescension. 

Some Bikur Cholim techniques are obvious. Some you learn on the job. Some, by being on the cholim side of Bikur Cholim.

LIJ is a teaching hospital; being there taught me a lot.

When I return to my rounds, I hope I will be a more sensitive volunteer, and can put into action some of the lessons that I learned as a patient.

The most important lesson I learned was that no matter how sympathetic I thought I had been while volunteering, no matter how empathetic I thought I had been, I realized that I had no clue about how it felt to be lying in a hospital bed, the object of someone’s altruistic outreach. 

Only someone who has been there, if only for a few days, even if only for a minor infirmity, knows.

It’s like when I lost my father nearly two decades ago. Only people who had also gone through a father’s death could most effectively offer words and advice of consolation.

Now I understand that hospitalization for a diagnosis that may appear minor, such as mine, can feel major to the patient. Even “minor” surgery (my incision was barely an inch long) is still surgery.

I understand now, as well, that I should not take it personally when a patient is not particularly alert or attentive to my presence. You don’t get much sleep in a hospital, often awakened regularly during the night by monitors beeping, nurses doing their job, and people making the sounds of unwell people. And that’s not counting the after-effects of anesthesia or the residual soreness from a breathing tube that had been placed in the patient’s throat during an operation.

I understand that a patient is bombarded with well-intentioned questions by doctors and nurses about what ordinarily would be private information about one’s bodily functions. Asking “How are you feeling?” has an entirely different, generic meaning when posed by a layman, not by someone wielding a stethoscope or medical chart.

I understand that in the hospital you lose your privacy (health care professionals may walk in at any time), your modesty (your hospital’s gown, which opens at the back, has to be held while walking to literally cover your behind, and a drainage bag collecting urine is on full display), and your control over your life (your time is not your own).

I understand that your concern – even while masked – about contracting Covid or the flu or some other unpleasant pathogens in the hospital’s wards pales against what a patient may be facing.

I understand that the person may be in pain, even though he or she is not moaning.

I understand that it’s embarrassing to summon a nurse in the middle of the night when you have to go to the bathroom and the drip bag in your arm needs to be disconnected.

I understand that a simple gesture, like offering someone some reading material, or lending an ear to a nervous person needing to unburden himself or herself, or knowing when to leave and let a patient rest, carries benefits you can not imagine.

I understand that you hear “God bless you!” more often during a few hours doing your rounds than at any other time in your life.

These are lessons for which I did not enroll, but which I appreciate.

Now I’ll cautiously speak about life on the outside – even about something as innocuous as walking to the hospital. 

Confined to a hospital room, you don’t get to breathe un-recycled fresh air. I didn’t realize this until I felt the chill of winter air in my lungs; it had never felt so good.

When my peak of health returns,  I look forward one day to once again serving as a volunteer in the hospital that took good care of me.

I’ll return properly chastened about how to be a more effective volunteer.

And I look forward to being called Zerach ben Pinchas once again. 

Steve Lipman was a staff writer for The New York Jewish Week from 1983 until 2020.

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Watch and Wait: A Jewish Mindfulness Practice

By Susan Spector (Cornville, AZ)

You. Have. A. Brain. Tumor.

Five words and everything changed. I became a patient on a Watch and Wait protocol I now call WaWa.

And that’s what I’m doing today. I stalk the online portal, waiting for my test results. The radiology report shows up just before bedtime. 

I skim over my three favorite words: the first one is “stable.” The second and third words go together: “grossly unremarkable.” Kinahora. That’s what my Yiddish-speaking Jewish grandmother would say, invoking the evil eye, not wanting to jinx the good news. 

I search out the fear, sensing I’ll find it, but not in a mindful, meditative or particularly grateful way. That gratitude I once believed would last forever, where did it go? 

FLAIR hyper intensities in cerebral white matter and white matter lesions.” And there it is. Something new. Something to be afraid of.

I chug my water, determined to flush away the gad, short for gadolinium, the intravenous contrast used earlier in the day. I want the heavy metal poison out of my body.  Gad is an injected light source used to illuminate what’s lodged deep inside my brain. Its atomic symbol is Gd, an acronym my tradition uses as a placeholder for the sacred nature of God’s ineffable and unpronounceable name. I contemplate a quote from the Holy Rascal teacher, Rabbi Rami Shapiro, “God is real and everything we say about God is made up.” It’s a mystery how the gad knows just where to go in my body. 

Ironically, I met the light of the Infinite Mystery, what the mystics call the Ein Sof, through the rogue cells deep inside my brain.  

When I broke out in a sweat on one of my bi-annual retreats inside the big magnet machine, I listened closely and heard a small voice, over and above the noise of the beast. I lay still.  Inhale, Sh’ma, pause. Exhale Yisrael, pause. Breathe in Adonai, pause. Exhale Eloheinu, pause. Breathe in Adonai, pause. Return the breath to the Source. Exhale, Echad. A six-word Jewish prayer mysteriously appeared. Despite the thrumming, drumming and clanking noise inside the machine, I connected. Partnered with divine energy, everything changed.

I head for an emergency visit to Dr. Google, worried I’m moving toward a life inside an assisted living facility. In the morning, I wake up early with no more clarity than the night before. I grab my coffee, sit down at the table, pull up an empty chair for my partner and anxiously fire up the laptop. I like to be early for the Zoom Room. It dials down the anxiety of meeting with the expert meditation guides. The neurodocs. 

In the beginning, they gave me the mantra for finding my sense of calm and quiet within. They gave me the practice. The WaWa. Now they keep me on track and pull me out of the rabbit holes I can’t seem to avoid. 

The lead meditation Teacher/Neuro-oncologist shows up, wearing a crisp white lab coat and looking radiant on the screen.  She gets right down to business, with her unusual combination of strength, clarity and comforting softness.

“Your MRI looks beautiful. All stable.”

“Yeah, but what are those new white matter lesions?”

She points to highlighted areas of the brain image on her screen share.

“This big white lesion is scar tissue. See how it follows the surgery path where Dr. Yirah did his magic to “let flow occur?” And these other white dots, well, you could call them “blessings of maturity.” 

She’s a poet. She skillfully moves the conversation and the meeting forward. 

“Were you comfortable with the nine-month scan interval or do you want to try and push it out to one year?”

“I don’t know, what do you recommend?”
“I would be comfortable either way.”

I turn to my partner, now sitting beside me at the table.

“What do you think?”

“I’d rather see sooner than later if something’s going to change” he says without

hesitation.

The neurodoc/poet moves the conversation along, directing the question back to me.

 “So, you’re the only one we haven’t heard from, what do you want?”

“Part of me wants to graduate to the annual milestone, but I’m more comfortable with 9 months also.” 

Everyone smiles at each other from their Zoom squares and I finally exhale.

The apprentice meditation teacher enters the Zoom room. He is a resident intern with a clipped data-only voice. 

“White matter lesions, clinically insignificant, 30% of MRI’s, higher in older people.” 

The master meditation teacher enters the Zoom room. The neurosurgeon.
I tell him I spent time last night with Dr. Google, chatting about white matter lesions.

“It’s Watch and Wait, not watch and worry. At least you weren’t consulting with

ChatGPT!” 

The mindfulness. The challenge. Return to the WaWa. 

Return to the breath. 

Susan Spector is a brain tumor survivor who focuses on writing as a path to healing She is a retired educator. Her true education began with her diagnosis at age 62. She is currently at work on a series of essays under the pen name Shoshanah bat Malka, with the working title Reporting Live from the Frontal Lobe. 

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Healing Service, Working?

by Mel Glenn (Brooklyn, NY)

Families come
to pray, to heal.
God, I am asking you for help.
Please hear me now.
Cries heavenward,
cast on a rising tide.
Will they be received?
“My friend has cancer.”
“My sister has Lyme Disease.”
“My mother’s at the beginning of Alzheimer’s”
“My brother just discovered a lump.”
“My husband just died of Lou Gehrig’s Disease.”
“My brother is not well.”
Everyone’s equal in the eyes of God,
equal in pain and loss.
Human beings join hands today,
hoping with renewed fervor,
that their prayers will fall
on welcoming ears,
and their suffering will be eased.

The author of twelve books for young adults, Mel Glenn has lived nearly all his life in Brooklyn, NY, where he taught English at A. Lincoln High School for thirty-one years.  Lately, he’s been writing poetry, and you can find his most recent poems in the YA anthology, This Family Is Driving Me Crazy, edited by M. Jerry Weiss.

If you’d like to learn more about his work, visit: http://www.melglenn.com/

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